There is a simple story that describes the essence of Rare Cancers Australia.
A boy and his father are walking along the beach. They are met with starfish strewn as far as the eye can see. The little boy picks one up and throws it back into the sea.
“Don’t bother, son, there are too many, you can’t make a difference to them all,” says the father.
The boy picks up another starfish, throws it into the sea and says, “I made a difference to that one.”
This story perfectly illustrates RCA’s approach to patient support; an approach that originates from co-founder Kate Vines.
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We believe that no Australian should have to go through their cancer journey alone.
Over the last 10 years, the team at Rare Cancers Australia has worked to improve the lives and health outcomes of Australians living with rare, less common and complex cancers – today and into the future.
Here are some examples of how we are making a difference.
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Rare Cancers Australia Ltd (RCA) is a charity whose purpose is to improve the lives and health outcomes of Australians living with rare and less common (RLC) cancers.
RCA has a number of key areas of focus: Creating a Patient Community, Advocacy, Patient Support Programs, Fundraising, Treatment & Research along with Early Diagnosis.
About our mission
Why rare cancer patients need our support
A cancer diagnosis can be abrupt, alarming and have a devastating impact on patients and their loved ones.
When patients are diagnosed, it is often accompanied by a plan. Their GP will give them information about their cancer and support services, send them for further testing, and write a referral to a specialist.
But what if the cancer is so rare that standard treatment does not yet exist?
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What is a rare cancer?
In Australia, a rare cancer is defined as an incidence of less than six per 100,000 of the population, and a less common cancer is an incidence between six and twelve inclusive per 100,000 of the population.
While we have seen increases in incidence for common cancers, we have also seen dramatic reductions in mortality due to early diagnosis and improved treatments, but this has not been the case for rare and less common cancers where diagnosis remains slow, and treatment availability limited.
Find Out More Rare Cancers Awareness Day
Meet the Team
Rare Cancers Australia (RCA) was founded in 2012 by Kate and Richard Vines. Over the past 9 years RCA has grown into a team of passionate, dedicated professionals focused on our mission to improve the lives of Australians affected by rare and less common cancers.
Founder & CEO
Executive Assistant to Richard Vines
Head of Policy & Public Affairs
Head of Patient Programs
Specialist Cancer Navigator
Specialist Cancer Navigator
Dr Emily Isham
Medical Correspondent & Content Manager
Head of Strategic Communication
Head of Fundraising
Head of Partnerships
Head of Asia Pacific Programs
Online Project Officer and Administrator
Rare Cancers PhD candidate (La Trobe University)
Board of directors
Meet the friendly faces behind Rare Cancers Australia and find out why we're all determined to make an impact.
Meet our team
Advocacy & Research
We can do better. We will do better.
Nobody is speaking for those diagnosed with a rare or less common cancer, there is no research funding, no funded treatments, nothing. It’s as though the system has decided that rare is just too hard.
National Oncology Alliance
The National Oncology Alliance (NOA) is a cancer advocacy initiative with more than 100 members in four pillars: patients, patient groups, clinicians and the pharmaceutical industry.Read more
Reports & Submissions
We are determined to increase awareness, highlight the need for further research and initiate policy discussion.Read more
Contact your local MP
We believe one of the best ways to get your voice heard by government is to let your local MP know what issues are facing people in their own electorate. As your representative, it is their job to listen. By working together, we can make a difference.
Find out how