Meet the Team
Rare Cancers Australia (RCA) was founded in 2012 by Kate and Richard Vines. Over the past 8 years RCA has grown into a team of passionate, dedicated professionals focused on our mission to improve the lives of Australians affected by rare and less common cancers
Founder & CEO
Founder & Head of Patient Support
Executive Assistant to Richard Vines
Dr Amanda Ruth
Policy & Public Affairs
Head of Strategic Planning & Chief Technology Officer
Patient Support Manager
Patient Support Coordinator
Patient Patient Coordinator
Dr Emily Isham
Senior Accounts & Administration Officer
Events & Fundraising Manager
Corporate Relations Manager
Community Engagement Manager
What is a rare cancer?
In Australia a Rare cancer is defined as one which has fewer than 6 diagnoses per 100,000 of the population and a Less Common cancer is one which has fewer than 12 diagnoses per 100,000 of the population.
While we have seen increases in incidence for common cancers, we have also seen dramatic reductions in mortality due to early diagnosis and improved treatments, but this has not been the case for RLC cancers where diagnosis remains slow, and treatment availability limited.
Find Out More
Rare Cancers Australia Ltd (RCA) is a charity whose purpose is to improve the lives and health outcomes of Australians living with rare and less common (RLC) cancers.
RCA has a number of key areas of focus: Creating a Patient Community, Advocacy, Patient Support Programs, Fundraising, Treatment & Research along with Early Diagnosis.
About our mission
Board of directors
Meet the friendly faces behind Rare Cancers Australia and find out why we're all determined to make an impact.
Meet our team
Advocacy & Research
We can do better. We will do better.
Nobody is speaking for those diagnosed with a rare or less common cancer, there is no research funding, no funded treatments, nothing. It’s as though the system has decided that rare is just too hard.
National Oncology Alliance
The National Oncology Alliance (NOA) is a cancer advocacy initiative with more than 100 members in four pillars: patients, patient groups, clinicians and the pharmaceutical industry.Read more
Reports & Submissions
We are determined to increase awareness, highlight the need for further research and initiate policy discussion.Read more
Contact your local MP
We believe one of the best ways to get your voice heard by government is to let your local MP know what issues are facing people in their own electorate. As your representative, it is their job to listen. By working together, we can make a difference.
Find out how