Dialog Box

Meet the Team

Rare Cancers Australia (RCA) was founded in 2012 by Kate and Richard Vines. Over the past 8 years RCA has grown into a team of passionate, dedicated professionals focused on our mission to improve the lives of Australians affected by rare and less common cancers

View Team  
Richard Vines

Founder & CEO

Kate Vines

Co-Founder & Chief Patient Officer

Lydia Willoughby

Executive Assistant to Richard Vines

Dr Amanda Ruth

Head of Policy & Public Affairs

Christine Cockburn

Head of Patient Support & Operations

Beth Abbey

Specialist Cancer Navigator

Alicia Moses

Project Administration Support

Dr Emily Isham

Content Manager

Jacqui Lidgard

Senior Accounts Officer

Natalie Clancy

Events & Fundraising Manager

Nikki Kerr

Corporate Relations Manager

James Mathews

Marketing Manager

Alexander Smith

IT Specialist

Christina Cho

Programme Lead - Pinnacle

Nikkie Beltran

Communications Manager

What is a rare cancer?

In Australia a rare cancer is defined as one which has fewer than 6 diagnoses per 100,000 of the population and a Less Common cancer is one which has fewer than 12 diagnoses per 100,000 of the population.

While we have seen increases in incidence for common cancers, we have also seen dramatic reductions in mortality due to early diagnosis and improved treatments, but this has not been the case for RLC cancers where diagnosis remains slow, and treatment availability limited.

Find Out More Rare Cancers Awareness Day 

Our mission

Rare Cancers Australia Ltd (RCA) is a charity whose purpose is to improve the lives and health outcomes of Australians living with rare and less common (RLC) cancers.

RCA has a number of key areas of focus: Creating a Patient Community, Advocacy, Patient Support Programs, Fundraising, Treatment & Research along with Early Diagnosis.

About our mission

Board of directors

Meet the friendly faces behind Rare Cancers Australia and find out why we're all determined to make an impact.

Meet our team

Advocacy & Research

We can do better. We will do better.

Nobody is speaking for those diagnosed with a rare or less common cancer, there is no research funding, no funded treatments, nothing. It’s as though the system has decided that rare is just too hard.

National Oncology Alliance

The National Oncology Alliance (NOA) is a cancer advocacy initiative with more than 100 members in four pillars: patients, patient groups, clinicians and the pharmaceutical industry.

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Reports & Submissions

We are determined to increase awareness, highlight the need for further research and initiate policy discussion.

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Contact your local MP

We believe one of the best ways to get your voice heard by government is to let your local MP know what issues are facing people in their own electorate. As your representative, it is their job to listen. By working together, we can make a difference.

Find out how