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Rare Cancers Australia

A place to learn

We understand it may be difficult to find information about a rare cancer, especially at a time when life may already seem stressful and confusing enough. We’ve compiled some resources to help you find the information you need.

My cancer

We have gathered information about a large range of rare cancers. Find out more about a cancer, the things that may cause it, the side-effects, and the treatments and support services available.

Browse the Knowledgebase


Also within our KnowledgeBase…

Cancer services

Australian hospitals, treatment centers and hospices with services in cancer care so you can find the appropriate level of care best suited to your needs.

Find a service

Health professionals

Our list offers some guidance for selecting a suitable Health Professional or Team to assist in diagnosis, right through to care and treatment options.

Browse professionals

Support services

These services are essential in alleviating some of the stress and hardship experienced by patients, carers, and families.

Find support

Clinical trials

The trials within this list help provide additional treatment pathways to cancer patients who may be finding their options limited and expensive.

Search trials


Australian Rare Cancer Portal

The Australian Rare Cancer Portal gives access to expert opinion and advice on management guidelines, testing options and clinical trials. 

Find out more Download Flyer

Treatment options

Discussing treatment options with your health professionals can be very confusing at first. We would like to try and take out some of the mystery and list all potential options you may be presented with during your journey.

See my options

Understand cancer terminology

It can be difficult throughout the journey when doctors and specialists start using words and phrases you were never even aware of before. We’ve tried to simplify things into everyday English.

Frequently searched terms:

Cancerous. Malignant cells can invade and destroy nearby tissues and spread to other parts of the body.


Non-Malignant, not cancerous. Benign tumours may grow larger but do not spread to other parts of the body.


A term for diseases in which abnormal cells divide without control and can invade nearby tissues. Cancer cells can also spread to other parts of the body through the blood and lymph systems. There are several main types of cancer, including carcinomas, sarcomas, leukaemias, lymphomas, multiple myeloma, and many others.


Immunotherapy, sometimes called biological therapy, is a type of cancer treatment that works by boosting a person’s own immune system to fight the cancer. Immunotherapy is currently approved in Australia for some types of cancers and is also being trialled for other cancers.


The spread of cancer cells from the place where they first formed to another part of the body. In metastasis, cancer cells break away from the original (primary) tumour, travel through the blood or lymph system, and form a new tumour in other organs or tissues of the body. The new, metastatic tumour is the same type of cancer as the primary tumour. For example, if breast cancer spreads to the lung, the cancer cells in the lung are breast cancer cells, not lung cancer cells. The plural form of metastasis is metastases.

Useful resources

If you can’t find the right answers within our KnowledgeBase, we have compiled a list of resources and relevant links that may help you answer any further questions you may have.

View all resources


My Cancer

Use our KnowledgeBase to further understand different cancer types.


What is Personalised Medicine?

Featuring Professor David Thomas from the Garvan Institute of Medical Research and Rare Cancers Australia CEO Richard Vines.



The CAN.recall App uses contemporary technology to assist patients at this time of great need.



Still have questions?

We have a friendly team available to chat about any questions you may have, or just to lend an ear if you’re having a tough time.

Call 1800 257 600Have us call you