The Reality of Rare
A rare cancer diagnosis often means limited information, treatment and support.
One out of every four people diagnosed with cancer in Australia is told that their type of cancer is rare. That’s one person every 13 minutes. Every 13 minutes, a daughter, a son, a mother or a father is told “we don’t know the next steps for you.” Diagnoses are often late and protracted, treatment options limited, prognoses uncertain, and information and support hard to come by. But there is reason for hope. We are working alongside government, clinicians, researchers and industry to create a future where no one is disadvantaged because of the rarity of their cancer.
What is a rare cancer?
The difference between common, rare and complex cancers, and why it matters.
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Why rare cancer patients need our support
People with rare, less common and complex cancers face a common set of challenges.
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How we make a difference
We are changing the story of a rare cancer diagnosis through limitless support and advocacy.
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What we want
We envision a world where there is equity in experience and outcomes for all people diagnosed with cancer.
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