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Personal Stories

Bronwyn’s story: Why I climb Kosi

My name is Bronwyn, and in 2020, I was diagnosed with malignant peripheral nerve sheath tumour sarcoma. I could barely pronounce it, let alone understand what it was and what it would mean for me, but I found out very quickly that it is a rare cancer. When I took on my first Kosi Challenge in 2024 with hundreds of other rare cancer patients, friends, families and professionals, all wearing our Rare caps, I saw all the other people who just “got it”.

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Inside Rare is a monthly newsletter that shares the latest news, events and stories connecting the rare community.