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Personal Stories
You may be rare, but you are not alone.
Stories from our community
Read more arrow_forwardReading the stories of other people impacted by rare cancer can provide insight and comfort – and remind us that we are not alone. Here are some experiences that have been generously shared by our rare cancer community across Australia.
Personal Stories
Noel’s story: Thymic Cancer
In February 2023, 35-year-old Noel was busy building his life – raising his son, planning a wedding, and working toward his goals – when a persistent cough led to a shocking diagnosis: a rare type of cancer called Thymic Carcinoma.
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Jane’s story: “I didn’t even know what it was, so how could I know to check?”
After losing her mother at a young age to breast cancera disease…
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Media Release: 35-year-old Melburnian seeks potential life-saving cancer treatment overseas
At 35 years old, Kathryn Berecic is blunt about her situation. “I’m…
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Inside Rare Newsletter
Inside Rare is a monthly newsletter that shares the latest news, events and stories connecting the rare community.
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Digital Resources
Our digital resources give a voice to those impacted by rare cancer, and to those advocating for a better world for rare.
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