External Resources

Resources you can trust to help navigate a rare cancer experience.

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Learning about rare cancers can help you feel more informed and empowered when having important discussions about your health. Here are some additional resources that can help you understand more about each stage of a rare cancer experience.    

Navigating a cancer diagnosis

This list of additional resources covers:

  • Managing and navigating your cancer diagnosis
  • Managing and navigating a childhood cancer diagnosis
  • Understanding your rights

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Managing cancer treatment

This list of additional resources covers:

  • Finding and participating in clinical trials
  • Accessing treatment
  • The Australian Rare Cancer (ARC) Portal
  • Cancer costs, financial support resources, and managing work
  • The Australian healthcare system
  • Evolving cancer therapies, cancer research, and genetic testing

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Managing difficult emotions, caring for your loved one, and accessing support

This list of additional resources covers:

  • Well-being, emotions and support
  • Breaking the news and managing relationships
  • Caring for your loved one and keeping yourself well

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Managing life after treatment

This list of additional resources covers:

  • Adjusting to life after cancer treatment
  • Patient advocacy
  • Palliative care, end-of-life-care, and advance care planning

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