Dialog Box

Rare Cancers Australia

Useful resources

Accessing non-PBS Funded Blood Cancer Drugs in Australia

This booklet was written to help you and your family navigate the complex system for accessing new blood cancer drugs in Australia, particularly ones that have not been funded on the Pharmaceutical Benefits Scheme. With thanks to the Leukaemia Foundation.


Ask the Doctor - Genes

Dr Shalin has the confronting experience of having his genomes sequenced. What will the test reveal about the future of his health? An look into genetic sequencing and the exciting possibilities it presents.


Australian Rare Cancer Portal

The Australian Rare Cancer (ARC) Portal is an online referral service that aims to improve outcomes and access to research for Australians diagnosed with a rare cancer.


Cancer and Coronavirus (COVID-19) Support and Information Sheet

If you have cancer your immune system may not be as strong as it is normally so you may feel concerned about the risks associated with COVID-19.


Can I Get This Medicine, Medical Service or Other Treatments in Australia

There are several pathways to accessing medicines, treatments and medical services. This tip sheet aims to make it easier for heath consumers to know the status o a treatment as part of having an informed discussion about your options with your doctor.


COVID-19 hub for Rare Cancer Community

Here you will find a centralised page showcasing resources and information that will assist you during this incredible time. The page will feature articles, videos and information sheets relevant to COVID-19 as well as some useful hints, tips and activities to do while you are at home.

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Embracing Carers - Carer Fact Sheet

Understanding the challenges that carers face around the world is needed so that action can be taken to increase recognition and support.


Explainer: how do drugs get from the point of discovery to the pharmacy shelf?

Not every drug designed by pharmaceutical companies makes it to the market; very few do. Only 9.6% of new drugs in development in the years 2006-2015 successfully made it to the market to be used by patients.


Genomic Cancer Medicine Program

Genomic medicine is the future for all cancer treatment, but will have its greatest impact for ‘rare’, high-mortality cancers. For more information about Genomic Medicine, click here.


Guide to Accessing Cancer Medicines in Australia - From discovery to PBS access

With thanks to Bristol-Myers Squibb.


Guide to Immuno-oncology

Immuno-oncolgy uses the bodies own immune system to help fight cancer. With thanks to Bristol-Myers Squibb.



Gain quick and easy access to clinical trials from a network of care teams around the world. Reduce the time you spend searching and be matched to your treatment options.

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How does cancer immunotherapy work?

Dr. Dan Chen explains how immunotherapy may affect the PD-L1/PD-1 pathway, enabling the body to better detect and fight cancer.


Immuno-oncology: a policy action framework

Creating enabling policies to provide patients with an innovative cancer treatment modality. With thanks to The European Expert Group on Immuno-Oncology.


PBAC Consumer Comments - Do's and Don'ts


Peter Mac A-Z of Cancer Words

There may be times in your cancer journey where you find yourself a little lost. Remember you can always ask your treating team if you don't understand a word or term.

Peter Mac have a A-Z of everyday cancer words and terms to help you understand your cancer journey.


Tip Sheet for Submitting Consumer Comments to the PBAC


Unusual Cancers of Childhood Overview

This link is to the National Cancer Institute (NCI) cancer website in the United States. There may be references to drugs and clinical trials that are not available here in Australia.