Lived Experience Survey

    If it matters to you, it matters to us.

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    Woman in chair having cancer treatment while listening to music

    Cancer support your way

    Support that is as unique and individual as you.

    How we help you
    Tristan

    Financial impact of cancer

    We asked our community about the financial impact cancer has had on their lives, illuminating the cost of cancer beyond medical statistics.

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    CANFORUM25

    Join us as we explore the lived experience of cancer at this years CanForum.

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    RCA CEO Christine Cockburn presenting at CanForum24

Cancer Information

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Emotional Support

No matter what stage you are within your journey, it can be tough. We can help you find support to help you through this.

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Tools & Resources

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

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Financial Support

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

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Find Support Services

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Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Peer Support

We can help you connect with others on a similar path so you can learn, share, and feel less alone.

Support Groups

We stand strong as a community. Our Support Groups are an opportunity to have real conversations with others who truly understand the reality of a rare cancer diagnosis.

Referring a patient

Refer your patient to us for one-on-one, tailored support from a Specialist Cancer Navigator.

    Nick and family

    “ Don’t be that tough guy; being the tough guy doesn’t beat cancer. The mental side is so important. ”

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    Collage of Liz Shoolbread

    “ If you want to support someone with cancer, don’t be frightened about saying the right or wrong thing. And if you are, just say that. I guarantee they’ll love you for it. ”

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    Patricia in hospital

    “ I’ve learnt that each day is precious, my family is precious, and I no longer sweat the small stuff. ”

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    Kate with her husband and daughter

    “ We have time on our side, and I’m optimistic that she will have options by the time she’s a young woman. ”

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How you can help

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Every donation to Rare Cancers Australia helps create a better world for rare.

Partner with us

Sponsor an event, donate an auction item, or chat about other partnership ideas - the opportunities are endless!

Fundraise

Fundraising allows you to make a difference by raising funds and awareness by reaching out to your networks for donations.

Support a patient

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Driving Change

One out of every four people diagnosed with cancer in Australia is told that their type of cancer is rare. That’s one person every 13 minutes. Every 13 minutes, a daughter, a son, a mother or a father is told “we don’t know the next steps for you.”

KnowledgeBase

Learn more about your cancer type, and find relevant cancer and support services, health professionals and clinical trials.

Latest News

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Keep up with Rare Cancers Australia

Inside Rare is a monthly newsletter that shares the latest news, events and stories connecting the rare community.