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Rare Cancers Australia
Cancer Information

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Emotional Support

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

Reach out
Tools & Resources

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

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Financial Support

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice

Need to talk to our Patient Support Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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Shortly after completing my last year of senior, I was diagnosed with a very rare liver cancer called Fibrolamellar Hepatocellular Carcinoma. This was 7 years ago in January 2016. I was 17 years of age.

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My son, Brodie, aged 21yrs old, started having vision issues back in September 2022, which led him to book in to get his eyes tested. We are hoping that Brodie's story can be shared to spread the word of helping my son get the treatment he deserves that will give him the best option for long-term life.

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My beautiful, smart, kind 16-year-old girl had her whole life ahead of her, then the words ‘your daughter has a rare cancer’ changed her future and she began her challenging journey.

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Today, I come to you as a mother with a plea that weighs heavily on my heart. My name is Mridula, and I with my husband, are at a critical juncture where your support can make all the difference both for us and for the precious future we dream for our daughter.

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"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

Share Your StorySee all stories

Fundraise for Rare Cancers

Run, skip, BBQ, walk, swim, shave, cycle, or sing to make it fair for Rare! By setting up a fundraising page you are contributing to our work and getting your community in on the act.

Support a fundraiser

Whether you want to set a personal challenge, participate in a local fun run, or host a small event, every dollar you raise will help make a difference.

Community fundraisers Create a fundraiser

Attending a challenge event?

We have partnered with several of Australia's iconic fun runs, marathons and running festivals. Register and participate as a charity superstar for Rare Cancers Australia.

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Rare Cancers Australia brings together leading experts in Canberra each year to talk about the latest developments, trends and issues in cancer care.  At CanForum we discuss the big opportunities and challenges in providing the best care to people diagnosed with cancer, including hearing first-hand from patients about their experiences.

Learn more  Register 

Latest Reports and SubmissionsCounting the Cost: The true value of Investing in cancer treatment