Dialog Box

A place to learn

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

Reach out
Things you'll need

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

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Less money stress

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice

Need to talk to our Patient Care Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

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Radio Rare

Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community.

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Dr Amanda Ruth, on the Future of Cancer Care in Australia

It's an exciting time in cancer care with advances in medicine allowing us to look more closely at each person’s cancer, and to identify more effective treatments for each patient’s case. 

In the latest episode of Radio Rare we explore this and what this means for patients with our very own Dr Amanda Ruth, Head of Policy and Public Affairs at Rare Cancers Australia and Executive Director of the National Oncology Alliance.

"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

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Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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In February 2019 only a few months after celebrating Oscar’s 3rd birthday and finding out he was going to become a big brother, we received the news that no parent should ever have to hear.

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In 2016 Eva was diagnosed with stage III breast cancer when she was 36. Unfortunately, the cancer recurred in 2018 less than a year after Eva finished treatment. It has now spread to innumerable bones and her liver.

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My name is Alex Ung, I am 34 years old. I am married with 3 children. I am the main income earner, my wife does not work. I have never been sick or hospitalised before, this is my first time.

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Srividya a 36-year-old mother was diagnosed with Stage 3C advanced ovarian cancer in September of 2020. Her ongoing treatment to keep the cancer at bay not covered under the PBS and totals around $7,500 AUD per month to purchase.

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What we do to help

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.

Find out more

Kosi Challenge

Save The Date

Join us for the climb from Thredbo to the summit of Mt Kosciuszko on Saturday 19th March 2022.

Take in some of Australia’s most stunning alpine countryside and help raise awareness and funds for Australians diagnosed with a rare and less common cancer.