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Rare Cancers Australia
Cancer Information

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Emotional Support

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

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Tools & Resources

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

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Financial Support

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice

Need to talk to our Patient Support Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the stories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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On the 21st of March 2023, Zai was diagnosed with stage 4, high-risk Neuroblastoma. Since his diagnosis, he has undergone one of the most gruelling treatment protocols a child can endure.

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It all started with pelvic pain. My GP thought it might just be a urinary tract infection, but a CT scan showed multiple swollen lymph nodes in my abdomen. That’s when they began the tests. Finally, after four months of searching, they found a tumour...

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In July 2023, we heard six little words no parents ever want to hear. “I’m sorry, your child has cancer”. It was discovered that Luna has a rare, aggressive, and fast-spreading childhood cancer. 

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I was working full-time, an athletic person and extremely fit, when I was diagnosed with cancer. In August 2020, I was diagnosed with an aggressive peritoneal metastatic ovarian cancer.

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"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

Share Your StorySee all stories

Fundraise for Rare Cancers

Run, skip, BBQ, walk, swim, shave, cycle, or sing to make it fair for Rare! By setting up a fundraising page you are contributing to our work and getting your community in on the act.

Support a fundraiser

Whether you want to set a personal challenge, participate in a local fun run, or host a small event, every dollar you raise will help make a difference.

Community fundraisers Create a fundraiser

Attending a challenge event?

We have partnered with several of Australia's iconic fun runs, marathons and running festivals. Register and participate as a charity superstar for Rare Cancers Australia.

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Rare Cancers Australia brings together leading experts in Canberra each year to talk about the latest developments, trends and issues in cancer care.  At CanForum we discuss the big opportunities and challenges in providing the best care to people diagnosed with cancer, including hearing first-hand from patients about their experiences.

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Latest Reports and Submissions