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We connect you with the latest COVID-19 information, advice and resources to help you navigate your cancer journey.
We have compiled a database of rare cancer types. Find out more about your cancer, clinical trials, specialists and support services available.
Rare Cancers Australia facilitates a variety of groups, over the telephone but we have the capacity to do video conferencing as well.
For too long, ‘patient-centricity’ and ‘person centred care’ have merely been notional concepts that have not been reflected in the reality of patients’ lived experience.
We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.
No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.
There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.
Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.
Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.
Call 1800 257 600Have us call you
Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.
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On the 21st of October 2021, my life was turned upside-down and inside-out following the devastating discovery of a large cancerous tumor on my liver. Advanced fibrolamellar hepatoma – an ultra-rare cancer approximately only 1 in 5 million people have it.
My name is Jolene Anderson. I'm 38 and have Stage 4 Colorectal cancer. I was diagnosed at 36, 5 months after my second daughter Layla was born. I won't have my babies burying their mum before they can even understand the concept of death.
Hi, I am a mother of 3 young beautiful children, aged 5, 4, and 11 months. This sudden diagnosis of stomach cancer has been such a blow to myself and our family.
When I was born my parents were told I would not live past five years old. Birthmarks (naevi) covered the lower half of my body; there were too many to remove and it was believed they would probably turn cancerous.
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Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community.
In the latest episode of the Radio Rare podcast, Clinical Nurse Specialists Julie and Giovanna from Cancer Council Victoria share how the turbulence of the last 18 months has affected people living with cancer, and what patients are most concerned about at the moment.
Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.
Find out more
Join us for the climb from Thredbo to the summit of Mt Kosciuszko on Saturday 19th March 2022.
Take in some of Australia’s most stunning alpine countryside and help raise awareness and funds for Australians diagnosed with a rare and less common cancer.
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