Dialog Box

A place to learn

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

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Things you'll need

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

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Less money stress

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice

Need to talk to our Patient Care Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

Radio Rare

Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community.

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COVID Connect: Impact of COVID-19 on our healthcare system, with Dr Nick Pavlakis and Geraldine McDonald

The impact of COVID-19 on our healthcare system has and continues to be significant. 

In our latest episode of Radio Rare in our COVID Connect mini-series, we take you into the hospital world and explore the NSW and Victorian experiences through the lens of two experts – Oncologist at Royal North Shore Hospital, Prof Nick Pavlakis and Director of Prevention and Wellbeing at the Peter MacCallum Cancer Centre, Geraldine McDonald.

"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

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Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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Meet our Mum, Maureen. The most selfless and generous person you could imagine. She has been a giver all her life and now she needs help.

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Amidst the COVID isolation and lockdowns in Melbourne last year, our family received the unthinkable news that our sweet baby boy Manoli (Oli) has cancer. Tests revealed it to be stage 4 Neuroblastoma with MYCN amplification.

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Kristeen has lived with a rare genetic mutation since she was a child. In October 2019, at age 49, Kristeen received an additional diagnosis – endocervical mucinous adenocarcinoma of the gastric type, a very rare subtype of cervical cancer.

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After 1 year of living life like a normal kid, we got the worst news. Our little boy had relapsed. After being classified as stage 4 high-risk Neuroblastoma in 2019, his Neuroblastoma had come back and in a big way.

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What we do to help

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.

Find out more

Kosi Challenge

Save The Date

Join us for the climb from Thredbo to the summit of Mt Kosciuszko on Saturday 19th March 2022.

Take in some of Australia’s most stunning alpine countryside and help raise awareness and funds for Australians diagnosed with a rare and less common cancer.