Dialog Box

A place to learn

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

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Things you'll need

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

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Less money stress

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice

Need to talk to our Patient Care Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

Radio Rare

Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community.

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Christmas Special: Mike George, an Australian Larykin

Our guest this week, making his debut appearance, is Mike George. One of a small number of Australias, who has undergone a laryngectomy. Mike talks us through the journey of his diagnosis, and advocacy work. As you'll hear not having a voice box hasn't slowed Mike down, hear him tell his own story.

"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

Share Your StorySee all stories

Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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Just shy of 12 months ago, and only two weeks before the birth of their second child, Phillip and Jessica Borg received the devastating news that Phil was diagnosed with an aggressive and fast-spreading form of Stage 4 bowel cancer.

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In July 2020 Mark developed back pain and abdominal cramps, which prompted a visit to his GP. After going for a CT scan he was diagnosed with Pancreatic Cancer.

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Back in October 2014, I had one of those annoying coughs that just wouldn’t go away and thankfully my GP insisted that I go for a CT scan. ‘Non-Hodgkin Lymphoma’ were three words so foreign to me that I had to ask the Dr to write it down for me.

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I recently received the devastating news that the life-saving immunotherapy drug isn't listed on the Public Health System. As a pensioner the news is devastating.

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What we do to help

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.

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Kosi Challenge

Join us for the climb from Thredbo the summit of Mt Kosciuszko on Saturday 13th March 2021.

Take in some of Australia’s most stunning alpine countryside and help raise awareness and funds for Australians diagnosed with a rare and less common cancer.

Find out more