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Rare Cancers Australia
Support Groups

Rare Cancers Australia facilitates a variety of groups, over the telephone but we have the capacity to do video conferencing as well.

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Rare Cancers KnowledgeBase

We have compiled a database of rare cancer types. Find out more about your cancer, clinical trials, specialists and support services available.

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Vision 20-30 Report

With input from more than 50 Australian experts and consultation with over 500 members of the cancer community, the NOA Vision 20-30 report casts a national direction for how cancer care will evolve over the next ten years for all cancer patients.

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Rare doesn't mean you're alone

We have a friendly, professional team waiting to talk to you 1800 257 600.

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A place to learn

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

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Things you'll need

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

Browse resources
Less money stress

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice



Need to talk to our Patient Care Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

Radio Rare

Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community.


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Dr. Damien Kee, Researching Rare Cancers

In episode one, we heard from Kate Vines on what life has been like living with a rare cancer. In episode two, we want to follow that with Dr. Damien Kee from the Austin Hospital and talk about what specifically makes rare and less common cancers so different from common types of cancer.

So join us, as Dr. Kee takes us down the rabbit hole that is clinical research and study, available wherever you get your podcasts.

You can learn more about ARC portal here: https://www.arcportal.org.au/ and visit the CART-Wheel website here: https://www.cart-wheel.org/


"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

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Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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Srividya

Srividya a 36-year-old mother was diagnosed with Stage 3C advanced ovarian cancer in September of 2020. Her ongoing treatment to keep the cancer at bay not covered under the PBS and totals around $7,500 AUD per month to purchase.

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Mark

From birth, Mark has experienced the challenges of a rare disorder that he would not expect to turn into a rare form of cancer. Throughout all the challenges that Mark has faced, he has always wished to be positive and remain an inspiration to his son - Seth.

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Phil

Just shy of 12 months ago, and only two weeks before the birth of their second child, Phillip and Jessica Borg received the devastating news that Phil was diagnosed with an aggressive and fast-spreading form of Stage 4 bowel cancer.

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Mark

In July 2020 Mark developed back pain and abdominal cramps, which prompted a visit to his GP. After going for a CT scan he was diagnosed with Pancreatic Cancer.

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What we do to help

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.

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Kosi Challenge

Join us for the climb from Thredbo the summit of Mt Kosciuszko on Saturday 13th March 2021.

Take in some of Australia’s most stunning alpine countryside and help raise awareness and funds for Australians diagnosed with a rare and less common cancer.


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Rare Cancers Australia

Rare Cancers Australia Ltd (RCA) is a charity whose purpose is to improve awareness, support and treatment of Australians with rare and less common (RLC) cancers.

© 2021 Rare Cancers Australia

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