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Rare Cancers Australia facilitates a variety of groups, over the telephone but we have the capacity to do video conferencing as well.
How can we prioritise the rights and roles of patients? Be a part of shaping our new research to inform the Australian Cancer Plan.
We have compiled a database of rare cancer types. Find out more about your cancer, clinical trials, specialists and support services available.
We have a friendly, professional team waiting to talk to you 1800 257 600.
We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.
No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.
There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.
Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.
Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.
Call 1800 257 600Have us call you
Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community.
In this weeks episode, we sit down and talk with Cindy Bakos and Cassandra Howcroft and explore why it’s so important for children living with a cancer diagnosis to stay active, and how parents can make it fun, together.
Cindy and Cass are two mums at the front of the exercise as medicine movement, with their organisation, Little Big Steps, making paediatric oncology wards just a little more active! Find out how on this episode of Radio Rare!
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Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.
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In 2016 Eva was diagnosed with stage III breast cancer when she was 36. Unfortunately, the cancer recurred in 2018 less than a year after Eva finished treatment. It has now spread to innumerable bones and her liver.
My name is Alex Ung, I am 34 years old. I am married with 3 children. I am the main income earner, my wife does not work. I have never been sick or hospitalised before, this is my first time.
Srividya a 36-year-old mother was diagnosed with Stage 3C advanced ovarian cancer in September of 2020. Her ongoing treatment to keep the cancer at bay not covered under the PBS and totals around $7,500 AUD per month to purchase.
In July 2020 Mark developed back pain and abdominal cramps, which prompted a visit to his GP. After going for a CT scan he was diagnosed with Pancreatic Cancer.
Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.
Find out more
Join us for the climb from Thredbo the summit of Mt Kosciuszko on Saturday 13th March 2021.
Take in some of Australia’s most stunning alpine countryside and help raise awareness and funds for Australians diagnosed with a rare and less common cancer.
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