Dialog Box

A place to learn

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

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Things you'll need

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

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Less money stress

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice

Radio Rare Podcast

Rare Cancers Australia is excited to announce that we are launching a podcast called Radio Rare. The podcast will share the stories of those in and around the rare or less common cancer community. Episodes are released every Tuesday at 9:30 am and are available below. You can also listen on Apple Podcasts, Spotify, and Google Podcasts. Follow and listen for free.

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Episode 18 - Bertalli Chair in Cancer Medicine, Professor Sean Grimmond

As precision medicine looks to provide new hope to cancer patients, we speak to Professor Sean Grimmond from the Melbourne University Centre of Cancer Research. Professor Grimmond discusses how far Genomic sequencing has come and how much further it will go.

Need to talk to our Patient Care Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

Read Anita's storySee all stories

Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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I recently received the devastating news that the life-saving immunotherapy drug isn't listed on the Public Health System. As a pensioner the news is devastating.

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I am very hopeful that this treatment works for me and extends the time I have left with my family and friends. My greatest wish is that  I get to see my two kids grow up.

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On the 25th of June 2017, I presented with food poisoning-like symptoms. Unfortunately, that wasn’t the case- I was diagnosed with Gastric Intestinal Stromal Tumour Cancer (GIST) stomach cancer.

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On September 4, 2019, I was celebrating my 23rd birthday, mum by my side having a biopsy of my neck at the Royal Melbourne Hospital. That last visit to the RMH a doctor who's name I don't remember probably saved my life.

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What we do to help

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.

Find out more

COVID-19 Guidance for Rare Cancers Australia community

Coronavirus (COVID-19) is a new strain of coronavirus affecting humans. Some coronaviruses can cause illness similar to the common cold and others can cause more serious diseases, such as Severe Acute Respiratory Syndrome (SARS) and Middle East Respiratory Syndrome (MERS). This novel coronavirus is still new and as such we are still learning more about it. 

Read the latest from RCA's Dr Emily Isham regarding the COVID-19 (Coronavirus) pandemic

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