Cancer Information
We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.
Learn more chevron_rightEmotional Support
No matter what stage you are within your journey, it can be tough. We can help you find support to help you through this.
Learn more chevron_rightTools & Resources
There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.
Learn more chevron_rightFinancial Support
Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.
Learn more chevron_rightFind Support Services
Find my... arrow_forwardEveryone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.
Patient Support Program
We are your first point of call after a rare cancer diagnosis.
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Refer a patient
Refer your patient to us for one-on-one, tailored support from a Specialist Cancer Navigator.
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Peer Support
We can help you connect with others on a similar path so you can learn, share, and feel less alone.
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Support Groups
We stand strong as a community. Our Support Groups are an opportunity to have real conversations with others who truly understand the reality of a rare cancer diagnosis.
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Rare Cancer Support Guide
Manage and navigate every stage of a rare cancer experience with the trusted information, tools and advice in the Rare Cancer Support Guide.
Read more arrow_forwardHow you can help
See more arrow_forwardEvery donation to Rare Cancers Australia helps create a better world for rare.
Partner with us
Sponsor an event, donate an auction item, or chat about other partnership ideas - the opportunities are endless!
Fundraise
Fundraising allows you to make a difference by raising funds and awareness by reaching out to your networks for donations.
Where your money goes
Your donation creates hope and shows people living with rare cancers they are not alone.
Support a patient
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Helping Blaze Broadway
Blaze Scarlett Broadway is 30 years old and has been fighting a…
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Helping Chris Byrne
My partner, Chris, was a dedicated Correctional Officer and accomplished motorbike racer…
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Helping Craig Lucanus
Helping Craig Lucanus Access Life-Saving Targeted Therapy Meet our Father, Craig, a…
Read more arrow_forwardDriving Change
One out of every four people diagnosed with cancer in Australia is told that their type of cancer is rare. That’s one person every 12 minutes. Every 12 minutes, a daughter, a son, a mother or a father is told “we don’t know the next steps for you.”
Why rare cancer patients need our support
People with rare, less common and complex cancers face a common set of challenges.
Learn more arrow_forwardHow we make a difference
We are changing the story of a rare cancer diagnosis through limitless support and advocacy.
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KnowledgeBase
Learn more about your cancer type, and find relevant cancer and support services, health professionals and clinical trials.
Latest News
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Media Releases
Survey reveals critical gaps in support for rare cancer patients
A national survey released today to mark World Cancera disease where abnormal…
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Latest PBAC recommendation puts fairer access to cancer medicines within reach
People with rare and less common cancers have been given new hope…
Read more arrow_forwardPersonal Stories
Bronwyn’s story: Why I climb Kosi
My name is Bronwyn, and in 2020, I was diagnosed with malignant peripheral nerve sheath tumour sarcoma. I could barely pronounce it, let alone understand what it was and what it would mean for me, but I found out very quickly that it is a rare cancer. When I took on my first Kosi Challenge in 2024 with hundreds of other rare cancer patients, friends, families and professionals, all wearing our Rare caps, I saw all the other people who just “got it”.
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