Dialog Box

A place to learn

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

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Things you'll need

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

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Less money stress

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice


Rare Bites

Introducing Rare Bites. A show that aims to break down the big chunks of technical jargon, and supply them into much easier to swallow bites. Lead by Dr Emily Isham, we will bring you weekly episodes aiming to answer your questions about the tricky topics in cancer.


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Navigating Palliative Care

Palliative Care. Two words that often cause so much discomfort and fear, but what do we really know about it? Join Dr Emily and Sidekick James, as they dive into the world of Palliative Care. #RareBites



Need to talk to our Patient Care Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

Read Anita's storySee all stories

Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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Mark 

In July 2020 Mark developed back pain and abdominal cramps, which prompted a visit to his GP. After going for a CT scan he was diagnosed with Pancreatic Cancer.

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Dean

Back in October 2014, I had one of those annoying coughs that just wouldn’t go away and thankfully my GP insisted that I go for a CT scan. ‘Non-Hodgkin Lymphoma’ were three words so foreign to me that I had to ask the Dr to write it down for me.

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Simon

I recently received the devastating news that the life-saving immunotherapy drug isn't listed on the Public Health System. As a pensioner the news is devastating.

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Claire

I am very hopeful that this treatment works for me and extends the time I have left with my family and friends. My greatest wish is that  I get to see my two kids grow up.

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What we do to help

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.

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TeeUp4Rare

Rare Cancers Australia Charity Golf Day

Also known as the Gem of the Southern Highlands, the Highlands Golf Course and Rare Cancers Australia welcomes you to join us for a relaxing 18 holes surrounded by picturesque scenery.

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