Cancer support your way
Support that is as unique and individual as you.
Rare Cancer Support Groups
Cancer Information
We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.
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Emotional Support
No matter what stage you are within your journey, it can be tough. We can help you find support to help you through this.
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Tools & Resources
There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.
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Financial Support
Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.
Learn more chevron_rightFind Support Services
Find my... arrow_forwardEveryone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.
Patient Support Program
We are your first point of call after a rare cancer diagnosis.
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Refer a patient
Refer your patient to us for one-on-one, tailored support from a Specialist Cancer Navigator.
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Peer Support
We can help you connect with others on a similar path so you can learn, share, and feel less alone.
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Support Groups
We stand strong as a community. Our Support Groups are an opportunity to have real conversations with others who truly understand the reality of a rare cancer diagnosis.
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Rare Cancer Support Guide
Manage and navigate every stage of a rare cancer experience with the trusted information, tools and advice in the Rare Cancer Support Guide.
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“ Don’t be that tough guy; being the tough guy doesn’t beat cancer. The mental side is so important. ”
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“ If you want to support someone with cancer, don’t be frightened about saying the right or wrong thing. And if you are, just say that. I guarantee they’ll love you for it. ”
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“ I’ve learnt that each day is precious, my family is precious, and I no longer sweat the small stuff. ”
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“ We have time on our side, and I’m optimistic that she will have options by the time she’s a young woman. ”
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How you can help
See more arrow_forwardEvery donation to Rare Cancers Australia helps create a better world for rare.
Partner with us
Sponsor an event, donate an auction item, or chat about other partnership ideas - the opportunities are endless!
Fundraise
Fundraising allows you to make a difference by raising funds and awareness by reaching out to your networks for donations.
Where your money goes
Your donation creates hope and shows people living with rare cancers they are not alone.
Support a patient
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Helping Tabitha Triplett
To those who do not know me, my name is Tabitha and…
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Helping Karen Walsh
My name is Karen. I’m a wife, mother and grandmother and in…
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Driving Change
One out of every four people diagnosed with cancer in Australia is told that their type of cancer is rare. That’s one person every 13 minutes. Every 13 minutes, a daughter, a son, a mother or a father is told “we don’t know the next steps for you.”
Cancer Lived Experience Survey
Complete our Cancer Lived Experience Survey and help change the story of a cancer diagnosis.
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People with rare, less common and complex cancers face a common set of challenges.
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We are changing the story of a rare cancer diagnosis through limitless support and advocacy.
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KnowledgeBase
Learn more about your cancer type, and find relevant cancer and support services, health professionals and clinical trials.
Latest News
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Media Releases
Greater access for rare cancer patients at the heart of new partnership
Patients diagnosed with rare cancers will now be able to gain better…
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One in four diagnosed. One every 13 minutes. Meet the faces of rare cancer
Thursday 26 June marks Rare Cancers Awareness Day, a powerful reminder of…
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Shining a light on rare cancers: The power of partnership for patients
This Rare Cancers Awareness Day, Icon Cancer Centre is proud to spotlight…
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