Dialog Box

Rare Cancers Australia
Questionnaire on patient rights and roles

The feedback we receive from the questionnaire will guide the development of a report focused on the rights and roles of cancer patients. This work has the potential to inform those who deliver care, treatment, support and policy, as well as key decision-makers.

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Patient rights and roles webinar series

Join us as we ignite lively discussion and debate around person-centred care and patient rights and roles by exploring the different perspectives that influence it.

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Rare Cancers KnowledgeBase

We have compiled a database of rare cancer types. Find out more about your cancer, clinical trials, specialists and support services available.

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Support Groups

Rare Cancers Australia facilitates a variety of groups, over the telephone but we have the capacity to do video conferencing as well.

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A place to learn

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

Reach out
Things you'll need

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

Browse resources
Less money stress

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice



Need to talk to our Patient Care Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

Radio Rare

Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community.


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Tamlin Hall: I'm not a Failure - a Teenage Perspective on Childhood Cancers

When many people think of childhood cancers, images of babies and toddlers often appear. But what about teenagers living with a rare cancer? 

This is a very different picture, and one that is often overlooked as Tamlin explains in our latest episode of Radio Rare.


"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

Share Your StorySee all stories

Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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Samantha

Sam is 33, married, with 2 daughters (4.5yrs + 2.5 years) and a 1-year-old son. She was hit with the most devastating news in April 2020. She has Stage 4 metastatic bowel cancer.

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Oscar

In February 2019 only a few months after celebrating Oscar’s 3rd birthday and finding out he was going to become a big brother, we received the news that no parent should ever have to hear.

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Eva

In 2016 Eva was diagnosed with stage III breast cancer when she was 36. Unfortunately, the cancer recurred in 2018 less than a year after Eva finished treatment. It has now spread to innumerable bones and her liver.

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Alex

My name is Alex Ung, I am 34 years old. I am married with 3 children. I am the main income earner, my wife does not work. I have never been sick or hospitalised before, this is my first time.

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What we do to help

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.

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Kosi Challenge

Save The Date

Join us for the climb from Thredbo to the summit of Mt Kosciuszko on Saturday 19th March 2022.

Take in some of Australia’s most stunning alpine countryside and help raise awareness and funds for Australians diagnosed with a rare and less common cancer.


Rare Cancers Australia

Rare Cancers Australia Ltd (RCA) is a charity whose purpose is to improve awareness, support and treatment of Australians with rare and less common (RLC) cancers.

© 2021 Rare Cancers Australia

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