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We have compiled a KnowledgeBase of rare cancer types. Find out more about your cancer, clinical trials, specialists and support services available.
Rare Cancers Australia facilitates a variety of groups, over the telephone but we have the capacity to do video conferencing as well.
We connect you with the latest COVID-19 information, advice and resources to help you navigate your cancer journey.
For too long, ‘patient-centricity’ and ‘person centred care’ have merely been notional concepts that have not been reflected in the reality of patients’ lived experience.
We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.
No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.
There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.
Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.
Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.
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Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.
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In January 2021 I was diagnosed with a rare form of clear cell ovarian cancer after experiencing some vague symptoms and a routine bowel screen test.
Zak is 19 years old now & it seems the battle is still not over. At 9 months of age, he was diagnosed with a rare Cancer. Sacrococcygeal teratoma (SCT) is a tumour that develops before birth and grows from a baby's coccyx.
Meet our mum, grandmother, daughter, sister, aunty, and friend, Mary. The most selfless, kind and positive woman who continues to inspire us even in her toughest times. Mary’s generosity radiates to not only family and friends but also strangers.
Turning 30 in April 2021, little did I know the nausea and fatigue symptoms I had would end up being diagnosed as Metastatic Fibrolamellar Hepatocellular Cancer (an extremely rare form of liver cancer that usually affects 20-30-year old’s) in June 2021.
Share Your StorySee all stories
Run, skip, BBQ, walk, swim, shave, cycle, or sing to make it fair for Rare! By setting up a fundraising page you are contributing to our work and getting your community in on the act.
Whether you want to set a personal challenge, participate in a local fun run, or host a small event, every dollar you raise will help make a difference.
We have partnered with several of Australia's iconic fun runs, marathons and running festivals. Register and participate as a charity superstar for Rare Cancers Australia.
Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.
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