Dialog Box

A place to learn

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

Learn more
Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

Reach out
Things you'll need

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

Browse resources
Less money stress

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice


Radio Rare Podcast

Rare Cancers Australia is excited to announce that we are launching a podcast called Radio Rare. The podcast will share the stories of those in and around the rare or less common cancer community. Episodes are released every Tuesday at 9:30 am and are available below. You can also listen on Apple Podcasts, Spotify, and Google Podcasts. Follow and listen for free.


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Episode 21: Rare Cancers Australia CEO, Richard Vines

For our final episode of Radio Rare, we chat to Rare Cancers Australia (RCA), CEO, Richard Vines as he pulls back the curtain and talks about how RCA came to be and why the need is so great. 

All clips in this episode can be found in Season One of Radio Rare.

Today's episode is sponsored by Care Connected



Need to talk to our Patient Care Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

Read Anita's storySee all stories

Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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Dean 

Back in October 2014, I had one of those annoying coughs that just wouldn’t go away and thankfully my GP insisted that I go for a CT scan. ‘Non-Hodgkin Lymphoma’ were three words so foreign to me that I had to ask the Dr to write it down for me.

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Simon

I recently received the devastating news that the life-saving immunotherapy drug isn't listed on the Public Health System. As a pensioner the news is devastating.

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Claire

I am very hopeful that this treatment works for me and extends the time I have left with my family and friends. My greatest wish is that  I get to see my two kids grow up.

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Megan

On the 25th of June 2017, I presented with food poisoning-like symptoms. Unfortunately, that wasn’t the case- I was diagnosed with Gastric Intestinal Stromal Tumour Cancer (GIST) stomach cancer.

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What we do to help

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.

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TeeUp4Rare

Rare Cancers Australia Charity Golf Day

Also known as the Gem of the Southern Highlands, the Highlands Golf Course and Rare Cancers Australia welcomes you to join us for a relaxing 18 holes surrounded by picturesque scenery.

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