Rare Cancer Support Guide

Comprehensive information to help you manage and navigate every stage of a rare cancer experience.

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Become a Kosi Challenger

Join us on Saturday, 18 March 2023 as we take on Australia's highest mountain, Mount Kosciuszko, or conquer our Virtual Kosi Challenge between 1 and 18 March 2023 for Australians with rare, less common and complex cancers.

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Cancer Support Your Way

We are specialists in the experience of cancer.

How We Can Help

Counting the Cost

This research explores the significant impact of cancer on the lives of Australians and their families, and the economic and societal benefits achieved by investing in cancer treatment to improve quality of life and prolong survival.

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Cancer Information

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Emotional Support

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

Reach out

Tools & Resources

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

Browse resources

Financial Support

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice

Need to talk to our Patient Support Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600 Have us call you

Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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Carolyn

Carol is now facing the toughest battle of her life, facing cancer again for the 4th time, having first battled Breast Cancer at the age of 50 and going into remission for 20 years.

Kathryn

Kat is a 33 year old who's gone through unimaginable pain and grief over the past 2 years. From what started as a fairly routine removal of her appendix due to appendicitis...

Jason

Jason from a little country town on the south coast, I run my own lawn mowing & maintenance business to help support my wife and two little boys.

Sarah

My wife Sarah is a doting mother of two amazing toddlers (4 and 3) who has just clawed her way out of a two year recovery from stage three breast cancer.

"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

Share Your Story See all stories

Fundraise for Rare Cancers

Run, skip, BBQ, walk, swim, shave, cycle, or sing to make it fair for Rare! By setting up a fundraising page you are contributing to our work and getting your community in on the act.

Create a fundraising page

Whether you want to set a personal challenge, participate in a local fun run, or host a small event, every dollar you raise will help make a difference.

Create a fundraising page Donate to a fundraiser

Attending a challenge event?

We have partnered with several of Australia's iconic fun runs, marathons and running festivals. Register and participate as a charity superstar for Rare Cancers Australia.

View Events

Driving change in access, affordability, and quality of care

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.