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Here you will find a centralised page showcasing resources and information that will assist you during this incredible time.
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Get all the latest updates for the rare cancer community here
We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.
No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.
There are tools, resources and services out there that can help you each step of the way. We can help take the pain out of it all.
Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.
Rare Cancers Australia is excited to announce that we are launching a podcast called Radio Rare. The podcast will share the stories of those in and around the rare or less common cancer community. Episodes are released every Tuesday at 9:30am and are available below. You can also listen on Apple Podcasts, Spotify, Google Podcasts and Deezer. Follow and listen for free.
Dr Richard Tothill from the University of Melbourne gives us a glimpse into the future of cancer treatments, particularly in CUP and NETS. His research in genomics is bringing cutting edge concepts to reality and we are on the cusp of a seismic shift. For this Genomics Group leader, its just another day in the lab.
Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.
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Read Anita's storySee all stories
Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.
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My name is Howard and 12 months ago I was diagnosed with rectal cancer. Whilst contributing personally to the cost of treatment, my savings are becoming depleted having not worked much in the last 12 months.
I am very hopeful that this treatment works for me and extends the time I have left with my family and friends. My greatest wish is that I get to see my two kids grow up.
On the 25th of June 2017, I presented with food poisoning-like symptoms. Unfortunately that wasn’t the case- I was diagnosed with Gastric Intestinal Stromal Tumour Cancer (GIST) stomach cancer.
On September 4, 2019 I was celebrating my 23rd birthday, mum by my side having a biopsy of my neck at the Royal Melbourne Hospital. That last visit to the RMH a doctor who's name I don't remember probably saved my life.
Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.
Find out more
Coronavirus (COVID-19) is a new strain of coronavirus affecting humans. Some coronaviruses can cause illness similar to the common cold and others can cause more serious diseases, such as Severe Acute Respiratory Syndrome (SARS) and Middle East Respiratory Syndrome (MERS). This novel coronavirus is still new and as such we are still learning more about it.
Read the latest from RCA's Dr Emily Isham regarding the COVID-19 (Coronavirus) pandemic
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Rare Cancers Australia Ltd (RCA) is a charity whose purpose is to improve awareness, support and treatment of Australians with rare and less common (RLC) cancers.
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