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For too long, ‘patient-centricity’ and ‘person centred care’ have merely been notional concepts that have not been reflected in the reality of patients’ lived experience.
We connect you with the latest COVID-19 information, advice and resources to help you navigate your cancer journey.
We have compiled a database of rare cancer types. Find out more about your cancer, clinical trials, specialists and support services available.
Rare Cancers Australia facilitates a variety of groups, over the telephone but we have the capacity to do video conferencing as well.
We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.
No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.
There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.
Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.
Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.
Call 1800 257 600Have us call you
Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community.
In the latest episode of the Radio Rare podcast, we chat to Rupert Saunders from headspace for an insight into what many young people are feeling in the wake of 18 months of constant changes and challenges. He also provides some tips and strategies for people of all ages who may be struggling to deal with the ongoing uncertainty.
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Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.
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When I was born my parents were told I would not live past five years old. Birthmarks (naevi) covered the lower half of my body; there were too many to remove and it was believed they would probably turn cancerous.
James’ one goal in life has been to be a good Dad to his two beautiful daughters. He is a GREAT Dad and more time with them to impact their lives and share in precious memories is all we are hoping for.
Meet our Mum, Maureen. The most selfless and generous person you could imagine. She has been a giver all her life and now she needs help.
Amidst the COVID isolation and lockdowns in Melbourne last year, our family received the unthinkable news that our sweet baby boy Manoli (Oli) has cancer. Tests revealed it to be stage 4 Neuroblastoma with MYCN amplification.
Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.
Find out more
Join us for the climb from Thredbo to the summit of Mt Kosciuszko on Saturday 19th March 2022.
Take in some of Australia’s most stunning alpine countryside and help raise awareness and funds for Australians diagnosed with a rare and less common cancer.
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