Dialog Box

A place to learn

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

Learn more
Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

Reach out
Things you'll need

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

Browse resources
Less money stress

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice



Need to talk to our Patient Care Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

See all patients

Nicolas

On the 21st of October 2021, my life was turned upside-down and inside-out following the devastating discovery of a large cancerous tumor on my liver. Advanced fibrolamellar hepatoma – an ultra-rare cancer approximately only 1 in 5 million people have it.

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Jolene

My name is Jolene Anderson. I'm 38 and have Stage 4 Colorectal cancer. I was diagnosed at 36, 5 months after my second daughter Layla was born. I won't have my babies burying their mum before they can even understand the concept of death.

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Sarah

Hi, I am a mother of 3 young beautiful children, aged 5, 4, and 11 months. This sudden diagnosis of stomach cancer has been such a blow to myself and our family.

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Barbara

When I was born my parents were told I would not live past five years old. Birthmarks (naevi) covered the lower half of my body; there were too many to remove and it was believed they would probably turn cancerous.

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"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

Share Your StorySee all stories

Radio Rare

Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community.


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COVID Connect: COVID and it's effect on people living with cancer, with Julie McGirr and Giovanna Raco

In the latest episode of the Radio Rare podcast, Clinical Nurse Specialists Julie and Giovanna from Cancer Council Victoria share how the turbulence of the last 18 months has affected people living with cancer, and what patients are most concerned about at the moment.


What we do to help

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.

Find out more

Latest Reports and SubmissionsRights and Roles of Australian Cancer PatientsNational Medicines Policy Submission 


Kosi Challenge

Registrations now open!

Join us for the climb from Thredbo to the summit of Mt Kosciuszko on Saturday 19th March 2022.

Take in some of Australia’s most stunning alpine countryside and help raise awareness and funds for Australians diagnosed with a rare and less common cancer.

Register Now!



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