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Rare Cancers Australia


Rare Cancer Support Guide

When your mind is reeling from a cancer diagnosis, it hard to digest all the information being thrown at you, to understand next steps, and to make clear decisions. Please know that you are not alone.

The RCA Rare Cancer Support Guide exists to walk you, your family and friends through every step of the treatment planning process.

Learn more about how the Treatment section of the Rare Cancer Support Guide can help you in this short clip from RCA Medical Correspondent, Dr. Emily Isham.

What you will find in the Treatment section

  • Planning for treatment
    What your treatment plan means, questions to ask, decisions you may need to make
  • Your healthcare professionals
    Who you are likely to meet and how they can help
  • Types of cancer treatment
    Treatment approaches for cancer and common side effects
  • When treatments aren’t available
    Why rare cancers have fewer treatment options, different options to consider
  • Clinical trials
    Things to consider when finding and participating in clinical trials
  • Work and finances
    Managing work and money during and after treatment
  • Navigating the health system
    Layers, challenges and major components of the health system
  • The science explained
    What cancer is, evolving science and research, and genetic testing

The knowledge shared in this section comes from trusted organisations and many health care professionals across the cancer care sector, with advice from patients and carers who have been there. It also includes the lessons we’ve learned at RCA over 10 years of supporting Australians with rare cancer.

Order the Treatment section of the Rare Cancer Support Guide for free information, tools and advice you can trust.

Order the Treatment booklet

Access the Treatment section of the Rare Cancer Support Guide

Please complete the fields below to download a PDF copy of the guide now.

Order Printed Copy 

Looking for different information? Learn about the Diagnosis, Relationships and Support, and Looking Ahead sections of the Rare Cancer Support Guide.

Useful resources

Download a full list of additional resources to help you manage and navigate cancer treatment.

Download Useful Resources List 

Related links

Rare Cancer Support Guide

The Rare Cancer Support Guide is designed to provide patients and their family and friends with comprehensive information to help them manage and navigate their unique cancer experience.

Learn more

Diagnosis Booklet

What to expect after a diagnosis, important questions to ask, and where to find more information. It also provides advice on managing difficult emotions and understanding your rights.

Learn More

Relationships and Support Booklet

Breaking the news, how to care for yourself and others, and maintaining your important relationships.

Learn More

Looking Ahead Booklet

Life after treatment, processing and sharing your experience, and what to do if cancer comes back or progresses.

Learn More