Dialog Box

Radio Rare

Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community. 

Being diagnosed with a rare cancer doesn’t mean you’re alone and Radio Rare will dive into the human stories of the rare cancer experience, the innovation and the advocacy. Addressing the feeling of isolation experienced by so many, we look to create a connected community of those affected by rare and less common cancers.

Listen to our latest episode

Episode 9: Genomics Group Leader, Dr Richard Tothill

Dr Richard Tothill from the University of Melbourne gives us a glimpse into the future of cancer treatments, particularly in CUP and NETS. His research in genomics is bringing cutting edge concepts to reality and we are on the cusp of a seismic shift. For this Genomics Group leader, its just another day in the lab.

Episodes are released every Tuesday at 9:30am and are available above. You can also listen on Apple Podcasts, Spotify, Google Podcasts and Deezer. Follow and listen for free.

Previous episodes

Listen to previous episodes using the drop down episode menus.

Episode 8: Carer and Patient, Christine Cockburn  

Christine Cockburn, Patient Support Manager here at Rare Cancers Australia shares the emotional story of caring for her mum during her cancer journey along with the roller coaster that was her own cancer journey. Christine provides insight from not only a carers perspective but a patient perspective as well.

Episode 7: Adam Lynch, President of BEAT Bladder Cancer Australia  

Adam Lynch, father of two children and founder of BEAT Bladder Cancer Australia shares the the journey of his late wife Anna as she tried to overcome Bladder Cancer. Adam dives into the inspiration of founding BEAT Bladder Cancer Australia.

Episode 6: Dr Rebecca Kelly  

Scientist, advocate, mum and caregiver Dr Rebecca Kelly sits down with us to talk about the highs and lows of caring for her to 8-year-old son Ryan who was diagnosed with leukemia. Dr Kelly dives into the hurdles of a new diagnosis and being able to advocate for a sick child and keep everything else moving along.

Episode 5: Psychologist Bruce Schubert  

Clinical psychologist of more then 30 years Bruce Schubert shares his observations and thoughts around the current state of physical distancing and how some are more suited to it than others. Bruce and Emily chat about what cancer patients have known for some time, that life doesn't always go the way you expected it to.

Episode 4: Carer Simone Cloake  

Often the glue that holds it all together when someone is diagnosed, is the carer. They don't sign up for the role and like the loved ones they care for - they don’t expect it. Simone Cloake tells her story of caring for her Dad after being cancer free for 21 years and diagnosed with a rare cancer called Cholangiocarcinoma. 

Episode 3: Carer Mohab Kamel  

Carers play a crucial role in a cancer patients journey often being the anchor to every day life. On episode 3 of Radio Rare Mohab Kamel very kindly and honestly shares the experience of his and his wife's cancer journey. Mohab also shares how he coped through the financial and emotional struggles. 

Episode 2: Paul Cross, BioPharma Dispatch Founder  

Radio Rare episode two! Paul Cross joins us for a passionate discussion about the approval process of new therapies. Paul is a publisher and the founder of the Biopharma Dispatch. We cover a wide range of topics from the PBS (Pharmaceutical Benefit Scheme) and HTA (Health Technology Assessment), to Australia's role in the global market and Paul's views on investing in new therapies to give people more time. 

Episode 1: Carer Richard Vines  

Welcome to the first episode of season 1! Dr Emily Isham sits down with Rare Cancers Australia CEO Richard Vines. Richard discusses his role as a carer over the past 30 years, the NFP industry and how RCA was born. 


Rare Cancer patients quite simply don't fit into the current health system. Radio Rare is a podcast that looks deeper into the issues that hold rare cancers back from having parity with the access, treatment pathways, timely diagnosis and overall survival common cancers experience. We talk to patients, their families, experts and game-changers on the current state of Rare.