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Rare Cancers Australia

Looking Ahead

Rare Cancer Support Guide

It’s easy to assume that finishing treatment is the end of a cancer story, but life beyond treatment is a whole new chapter. Please know that you are not alone.

The Rare Cancer Support Guide can walk you through what to expect, and where to turn for support.

Learn more about how the Looking Ahead section of the Rare Cancer Support Guide can help you in this short clip from RCA Medical Correspondent, Dr. Emily Isham.



What you will find in the Looking Ahead section

  • When treatment is over
    Practical questions to ask, and adjusting to life after treatment
  • Your voice matters
    What advocacy looks like, and if sharing your story is right for you
  • If cancer comes back or progresses
    Things to consider, plus what palliative care actually is and how it can help

The advice incorporates the lived experience of patients and carers, and the knowledge of many health care professionals across the cancer care sector. It also includes the lessons we’ve learned at RCA over 10 years of supporting Australians with rare cancer.

Order the Looking Ahead section of the Rare Cancer Support Guide for free information, tools and advice you can trust.


Order the Looking Ahead booklet

Order Printed Copy 

Download the Looking Ahead section of the Rare Cancer Support Guide

Looking for different information? Learn about the Diagnosis, Treatment, and Relationships and Support sections of the Rare Cancer Support Guide.


Useful resources

To download a full list of additional resources to help you manage life after treatment.

Download Useful Resources List 


Related links

Rare Cancer Support Guide

The Rare Cancer Support Guide is designed to provide patients and their family and friends with comprehensive information to help them manage and navigate their unique cancer experience.

Learn more




Diagnosis Booklet

What to expect after a diagnosis, important questions to ask, and where to find more information. It also provides advice on managing difficult emotions and understanding your rights.

Learn More



Treatment Booklet

Planning for treatment, managing work and finances, and what to do when treatments aren’t available. It also outlines how to navigate the health system and the science of cancer.

Learn More



Relationships and Support Booklet

Breaking the news, how to care for yourself and others, and maintaining your important relationships.

Learn More

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