Donate Register for Kosi 2020

What do you need?

You don’t have to go through this alone

Being diagnosed with a rare cancer doesn’t mean you’re the only one going through this journey. We are here to help ease the stress by providing information, resources, and a support network no matter which stage of the journey you may be in.

A place to learn

We understand it may be difficult to find information about a rare cancer, especially at a time when life may already seem stressful and confusing enough. We’ve compiled some resources to help you find the information you need.

My cancer

We have gathered information about a large range of rare cancers. Find out more about a cancer, the things that may cause it, the side-effects, and the treatments and support services available.

Our knowledgebase

Explain this term

It can be difficult throughout the journey when doctors and specialists start using words and phrases you were never even aware of before. We’ve tried to simplify things into everyday English.

Glossary

Can I learn more?

If you can’t find the right answers within our KnowledgeBase, we have compiled a list of resources and relevant links that may help you answer any further questions you may have.

More resources

Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

Want to chat?

We have a friendly team available to chat about any questions you may have, or just to lend an ear if you’re having a tough time.

Call 1800 257 600 Have us call you

Support services

We keep connected with relevant support services so it’s easier for you to find help during the toughest times.

Find help

Personal stories

Sometimes it helps to know there are others who are also struggling, and many who have overcome the worst of it.

Get inspiration

Your support network

Once you have a handle on the information you need about your diagnosis, you might have people asking you how they can help. Sometimes it is hard to know how to respond.

Talk it out

The right places and tools

There are tools, resources and services out there that can help you each step of the way. We can help take the pain out of it all.

Health services

We can help you find the right clinics and health professionals to help you through this journey.

Find Help

Clinical trials

It’s good to know your options when it comes to treatments. Have a browse through the current and previous trials.

See the options

CAN.recall app

Along your journey you’ll likely have many appointments, with important information. Our app can help you recall it all.

Improve your memory

Less money stress

We offer our Patient Treatment Fund, as well as some useful information on how to take the financial worry out of your visits to the hospital or pharmacy.

Patient Treatment Fund

It is vital that Australians can receive the best possible treatment available, regardless of their financial position.

Find out more

Financial assistance services

Many major organisations have processes in place to help ease the financial burden while you may be struggling.

Financial Counselling

Financial Counselling Australia provide assistance with budgeting and supporting you to advocate while experience financial distress. Contact them on 1800 007 007 or ndh.org.au

ndh.org.au

Carers corner

It’s difficult to know exactly what to say or do when a loved one is going through a tough time in their life. We can offer some advice on how to ease the burden of someone with cancer.