Dialog Box

What do you need?

You don’t have to go through this alone

Being diagnosed with a rare cancer doesn’t mean you’re the only one going through this journey. We are here to help ease the stress by providing information, resources, and a support network no matter which stage of the journey you may be in.


A place to learn

We understand it may be difficult to find information about a rare cancer, especially at a time when life may already seem stressful and confusing enough. We’ve compiled some resources to help you find the information you need.



Someone to listen

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.


Get Support

We have a friendly team available to chat about any questions you may have, or just to lend an ear if you’re having a tough time.

Call 1800 257 600Have us call you




The right places and tools

There are tools, resources and services out there that can help you each step of the way. We can help take the pain out of it all.



Less money stress

We offer our Patient Treatment Fund, as well as some useful information on how to take the financial worry out of your visits to the hospital or pharmacy.



Carers corner

It’s difficult to know exactly what to say or do when a loved one is going through a tough time in their life. We can offer some advice on how to ease the burden of someone with cancer.

Find out more





Radio Rare

Radio Rare is a podcast that shares the stories of those in and around the rare and less common cancer community. 

Being diagnosed with a rare cancer doesn’t mean you’re alone and over the next 10 weeks we will dive into the human stories of the rare cancer experience, the innovation and the advocacy. Addressing the feeling of isolation experienced by so many, we look to create a connected community of those affected by rare and less common cancers.

Listen now:


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