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Personal Stories
You may be rare, but you are not alone.
Stories from our community
Read more arrow_forwardReading the stories of other people impacted by rare cancer can provide insight and comfort – and remind us that we are not alone. Here are some experiences that have been generously shared by our rare cancer community across Australia.
Personal Stories
Bronwyn’s story: Why I climb Kosi
My name is Bronwyn, and in 2020, I was diagnosed with malignant peripheral nerve sheath tumour sarcoma. I could barely pronounce it, let alone understand what it was and what it would mean for me, but I found out very quickly that it is a rare cancer. When I took on my first Kosi Challenge in 2024 with hundreds of other rare cancer patients, friends, families and professionals, all wearing our Rare caps, I saw all the other people who just “got it”.
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Erin’s story: The reality of motherhood and cancer
Erin has always been a trailblazer. A qualified motorcycle technician, she became…
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Ashlynn’s story: Making the best of the worst circumstances
At just 26, Ashlynn faced a rare ovarian cancer diagnosis while completing her university degree – and caring for her father, who was diagnosed with bowel cancer just weeks later.
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Inside Rare Newsletter
Inside Rare is a monthly newsletter that shares the latest news, events and stories connecting the rare community.
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Digital Resources
Our digital resources give a voice to those impacted by rare cancer, and to those advocating for a better world for rare.
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