If you would like to share your story, we would love to hear from you. Please email [email protected].
Personal Stories
You may be rare, but you are not alone.
Stories from our community
Read more arrow_forwardReading the stories of other people impacted by rare cancer can provide insight and comfort – and remind us that we are not alone. Here are some experiences that have been generously shared by our rare cancer community across Australia.
Personal Stories
Ashlynn’s story: Making the best of the worst circumstances
At just 26, Ashlynn faced a rare ovarian cancer diagnosis while completing her university degree – and caring for her father, who was diagnosed with bowel cancer just weeks later.
Read more arrow_forwardPersonal Stories
Noel’s story: Thymic Cancer
In February 2023, 35-year-old Noel was busy building his life – raising his son, planning a wedding, and working toward his goals – when a persistent cough led to a shocking diagnosis: a rare type of cancer called Thymic Carcinoma.
Read more arrow_forwardPersonal Stories
Jane’s story: “I didn’t even know what it was, so how could I know to check?”
After losing her mother at a young age to breast cancera disease…
Read more arrow_forwardMore resources
Inside Rare Newsletter
Inside Rare is a monthly newsletter that shares the latest news, events and stories connecting the rare community.
Read more arrow_forward
Digital Resources
Our digital resources give a voice to those impacted by rare cancer, and to those advocating for a better world for rare.
Read more arrow_forward