My name is Bronwyn, and in 2020, I was diagnosed with malignant peripheral nerve sheath tumour sarcoma. I could barely pronounce it, let alone understand what it was and what it would mean for me, but I found out very quickly that it is a rare cancer.
When I took on my first Kosi Challenge in 2024 with hundreds of other rare cancer patients, friends, families and professionals, all wearing our Rare caps, I saw all the other people who just “got it”.
At just 26, Ashlynn faced a rare ovarian cancer diagnosis while completing her university degree – and caring for her father, who was diagnosed with bowel cancer just weeks later.
In February 2023, 35-year-old Noel was busy building his life – raising his son, planning a wedding, and working toward his goals – when a persistent cough led to a shocking diagnosis: a rare type of cancer called Thymic Carcinoma.
