When Rachel’s sister Danielle went to the GP with back pain in March 2021, she assumed it was from poor posture at her laptop, perhaps she’d pinched nerve? It was in fact from lesions on her spine, which were metastases from Medullary Thyroid Cancer.
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“I refuse to allow it to be purposeless, which is why my husband and I share our story to inspire and empower others. We advocate for gene profiling and molecular screening, which saves lives."
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I discovered I had gastrointestinal stromal tumours [GIST] when I was 18. At the time I had over 50 seedings of tumours in my small bowel. They told me I had a prognosis of 12 months, with no treatment options and no cure.
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Working as a Project Administrative Support Specialist at RCA has been an eye-opening experience for rare ovarian cancer survivor, Alicia.
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I am many things. I am a husband, a father of three beautiful children, a brother, a son, a friend and a rare cancer patient. I was diagnosed on Christmas eve in 2009 at the age of 25, a newly married man.
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Rachel has been supporting her husband, Luke since 2015 when he was diagnosed with Alveolar Soft Part Sarcoma (ASPS) and was given “possibly months” to live.
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During September, Rare Cancers Australia (RCA) marked Childhood Cancer Awareness Month by shining a light on the realities and resilience behind the amazing childhood cancer community.
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“What I want people to know from all of this is that there is hope, and it can be found in the places you least expect. Don’t be afraid to think outside the box.”
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Karen was diagnosed with Liposarcoma four years ago, when she was 48 years old. What felt like menopause symptoms - including fatigue and hot flushes - and what appeared to be weight gain was actually the slow growing cancer in her body.
Read more arrow_forwardWe loved meeting Julia this morning and sharing in her beautiful poetry, with verses written as she underwent treatment for breast cancer.
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