The Children’s Tumoura tissue mass that forms from groups of unhealthy cells Foundation of Australia is a not-for-profit organisation dedicated to providing information, resources and support services to children, their famililes and adults living with neurofibromatosis (NF).
People with NF face complex health issues, and the condition also impact a person’s mental health, social relationships, work and education. Expert knowledge and specialised care are limited, making management of the condition difficult. We exist to provide free, specialised support, connection programs, guidance navigating healthcare, advocacy and research.
We empower kids, adults and their families with the knowledge, connections and support needed at every stage of their journey, working to improve life outcomes in three ways:
RCA is not affiliated with this organisation. It is the responsibility of the patient and their carer(s) to determine whether this or any other support group or organisation listed on this website may provide some benefit to them.
Location
Children's Tumour Foundation of Australia (NF Australia), Level 1/132-134 Davidson Avenue, North Strathfield NSW, Australia