Large Bowel Neuroendocrine Tumours

Large bowel neuroendocrine tumours (NETs), also known as NETs of the large intestine, are rare tumours that develop in the large bowel, the long, hollow, tube that is the last part of the gastrointestinal tract. It is composed of three main sections – the caecum, colon, and rectum.

Neuroendocrine cancers are a complex group of tumours that develop in the neuroendocrine system, which is responsible for regulating important bodily functions such as heart rate, blood pressure and metabolism. They most commonly develop in the gastro-intestinal tract, pancreas, and the lungs; however, they can develop anywhere in the body. These tumours develop from neuroendocrine cells, which are responsible for receiving signals from the nervous system and producing hormones and peptides (small proteins) in response.

Large bowel NETs are diagnosed equally among the sexes, and tend to be diagnosed in people over 50. However, anyone can develop this disease.

Types of Large Bowel Neuroendocrine Tumours

There are two primary types of large bowel NETs, which are categorised by their location within the large bowel.

Colon Neuroendocrine Tumours

Colon NETs are a very rare type of NET that develops in the colon, the largest, middle portion of the large bowel. These tumours are often large and aggressive, and are often likely to metastasise. Colon NETs can have a good prognosis when caught early.

Rectal Neuroendocrine Tumours

Rectal NETs are a common type of large bowel NET that develops in the rectum, the end portion of the large bowel that connects to the anus. In many cases, rectal NETs are asymptomatic, and are often found by accident. As they are asymptomatic, they are often diagnosed at a late stage of disease, and may have metastasised. Rectal NETs can have a good prognosis.

Treatment

If a large bowel NET is detected, it will be staged and graded based on size, metastasis, and how the cancer cells look under the microscope. Staging and grading helps your doctors determine the best treatment for you.

Cancers can be staged using the TNM staging system:

  • T (tumour) indicates the size and depth of the tumour.
  • N (node) indicates whether the cancer has spread to nearby lymph nodes.
  • M (metastasis) indicates whether the cancer has spread to other parts of the body.

This system can also be used in combination with a numerical value, from stage 0-IV:

  • Stage 0: this stage describes cancer cells in the place of origin (or ‘in situ’) that have not spread to nearby tissue.
  • Stage I: cancer cells have begun to spread to nearby tissue. It is not deeply embedded into nearby tissue and had not spread to lymph nodes. This stage is also known as early-stage cancer.
  • Stage II: cancer cells have grown deeper into nearby tissue. Lymph nodes may or may not be affected. This is also known as localised cancer.
  • Stage III: the cancer has become larger and has grown deeper into nearby tissue. Lymph nodes are generally affected at this stage. This is also known as localised cancer.
  • Stage IV: the cancer has spread to other tissues and organs in the body. This is also known as advanced or metastatic cancer.

Cancers can also be graded based on the rate of growth and how likely they are to spread:

  • Grade I: cancer cells present as slightly abnormal and are usually slow growing. This is also known as a low-grade tumour.
  • Grade II: cancer cells present as abnormal and grow faster than grade-I tumours. This is also known as an intermediate-grade tumour.
  • Grade III: cancer cells present as very abnormal and grow quickly. This is also known as a high-grade tumour.

Once your tumour has been staged and graded, your doctor may recommend genetic testing, which analyses your tumour DNA and can help determine which treatment has the greatest chance of success. This is often performed after a biopsy, and can help guide treatment options for you.

Treatment is dependent on several factors, including location, stage of disease and overall health.

Treatment options for large bowel NETs may include:

  • Surgery, potentially including:
    • Endoscopic mucosal resection.
    • Right or left hemicolectomy.
    • Sigmoid colectomy.
    • Colectomy.
    • Proctocolectomy.
  • Somatostatin analogues (SSAs).
  • Chemotherapy.
  • Radiation therapy, potentially including peptide receptor radionuclide therapy (PRRT).
  • Targeted therapy.
  • Clinical trials.
  • Palliative care.

Risk factors

Because of how rare large bowel NETs are, there has been little research done into the risk factors of this disease.

Symptoms

Some people with large bowel NETs will appear asymptomatic in the early stages of disease. As the tumour progresses, some of the following symptoms may appear:

  • Changes in bowel habits, potentially including:
  • Diarrhoea.
  • Constipation.
  • Feeling of incomplete bowel movement.
  • Thin bowel stools.
  • Rectal bleeding or blood in stools.
  • Stools that appear darker in colour, often black.
  • Abdominal pain, bloating and/or cramping.
  • Anal and/or rectal pain.
  • Unexplained weight loss.
  • Fatigue.
  • Anaemia.
  • Bowel obstruction.
  • Carcinoid syndrome (rare), which carries its own set of symptoms:
    • Facial flushing (usually red or purple in the face, neck, and/or upper chest).
    • Diarrhoea.
    • Wheezing.
    • Abdominal pain.
    • Carcinoid heart disease (plaques on the heart muscle caused by excess hormone production).
    • Fatigue.
    • Skin changes, such as red or purple spots on the face, neck, and/or upper chest.
  • Paraneoplastic syndromes (rare).
  • Hypercalcaemia (rare).

Not everyone with the symptoms above will have cancer, but see your general practitioner (GP) if you are concerned.

Diagnosis

If your doctor suspects you have a large bowel NET, they may order the following tests to confirm the diagnosis and refer you to a specialist for treatment:

  • Physical examination.
  • Blood tests.
  • Faecal occult blood test (FOBT).
  • Imaging tests, potentially including:
    • MRI (magnetic resonance imaging).
    • CT (computed tomography) scan.
    • PET (positron emission tomography) scan.
    • Barium studies.
  • Colonoscopy.
  • Biopsy.

References

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