Event Details
Tuesday 2 September 2025, 10:00am – 4:30pm,
The Great Hall, Australian Parliament House, Canberra
The rare community has waited too long for a fair go; for equal access to diagnostic tests, information, support, trials and treatments. Our Cancer Lived Experience Survey has given us – for the first time – a national view of what’s going on for people with rare cancers, and for their carers, from the first signs and symptoms through to palliative and end of life care.
With almost 2,500 responses from people living with cancer and from carers, we now have groundbreaking insights of the lived experience of adults with cancer in Australia, with a particular focus on people with rare and less common cancers.
This deep dive into the lives of so many people impacted by cancer has provided us with an all-important baseline, helping us to better understand their experiences and unmet needs. These insights will inform what more needs to be done to bring about real change, so that everyone is given the best possible chance to live beyond cancer.
When we know better, we do better. Patients have waited too long. Now it’s personal.
CanForum is the annual, patient-focused advocacy event for Rare Cancers Australia, that brings together patients, carers, government, patient organisations, health professionals and industry to investigate the key issues in cancer care.
Hear from expert speakers and panels, join the conversation, be inspired by personal stories from people living with cancer and walk away with a refreshed determination to help change the story of a rare cancer diagnosis.
This year’s Canforum will not be livestreamed, however a complete recording of all sessions will be made publicly available within 24hours of the events completion.