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Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.
A report on the major progress made in RLC cancers in the last 12 months, following the launch of the landmark report Rare Solutions: A Time to Act in August 2017.
First report of its kind paves the way for government, industry and research community to unite to improve access and outcomes for Australian patients
This submission adresses the availability and accessibility which is a diagnostic imaging equipment - such as ultrasound, computed tomography (CT), nuclear medicine, radiography (x-ray), magnetic resonance imaging (MRI) and positron emission tomography (PET) - in Australia.
Diagnostic imaging is a critical part of the cancer journey and our submission can be found here as well as our response to the Committee's recommendations here.
This submission adresses the urgent need for improved funding into research for cancers with low survival rates, many of which are rare or less common.
A trancscript of our CEO Richard Vines' address to the senate inquiry public hearing can be found here
The need for patient groups to provide constructive input into the shape and priorities of health services within the Asia region.
2016 update on the status of rare and less common cancers in Australia, including patient outcomes, research and treatment funding.
Details incidence, mortality and survival rates and also examines current funding levels for research and treatment.
This submission was presented to the Senate Community Affairs Committee and addresses the shortfalls of our current medicines funding and access model. It offers two recommendations to improve the system.
A survey of pharmaceutical company employees, physicians and patient/advocacy group members.
Stay up to date with the latest news including upcoming events, campaigns and announcements from Rare Cancers Australia.
Rare Cancers Australia Ltd (RCA) is a charity whose purpose is to improve awareness, support and treatment of Australians with rare and less common (RLC) cancers. In Australia in 2017, an estimated 52,000 people will be diagnosed with a RLC cancer and 25,000 will die from them, according to Cancer in Australia 2017 estimates.