Dialog Box

Cancer Information

We understand it may be difficult to find information about a rare cancer, so we've compiled a knowledgebase to help you.

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Emotional Support

No matter what stage you are within your journey, it can be tough. We can help you seek out support networks to help you through this.

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Tools & Resources

There are tools, resources, and services out there that can help you each step of the way. We can help take the pain out of it all.

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Financial Support

Our Patient Treatment Fund can help take the financial worry out of visits to the hospital or pharmacy. We can also offer helpful advice.

Free advice


Need to talk to our Patient Support Team?

Everyone and every cancer is different, so we have a friendly team you can chat with about any questions you may have. If they don't have the answers they will definitely know where to look.

Call 1800 257 600Have us call you

Help a patient

Cancer impacts everyone in the community. The enormity of such a diagnosis is compounded by the uncertainty surrounding rare and less common cancers, and most alarmingly, the lack of affordable treatment options. Read the strories of the patients below, and help someone's child, partner or parent today by making a donation that will go directly to them.

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Jamie

In 2019, his life was turned upside down when he was diagnosed with Diffuse Midline Glioma in his spinal cord. He is now confined to a wheelchair.

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Zak

Zak is 19 years old now & it seems the battle is still not over. At 9 months of age, he was diagnosed with a rare Cancer. Sacrococcygeal teratoma (SCT) is a tumour that develops before birth and grows from a baby's coccyx.

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Mary

Meet our mum, grandmother, daughter, sister, aunty, and friend, Mary. The most selfless, kind and positive woman who continues to inspire us even in her toughest times. Mary’s generosity radiates to not only family and friends but also strangers.

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Chantelle

Turning 30 in April 2021, little did I know the nausea and fatigue symptoms I had would end up being diagnosed as Metastatic Fibrolamellar Hepatocellular Cancer (an extremely rare form of liver cancer that usually affects 20-30-year old’s) in June 2021.

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"It's a tough journey but I'm a fighter and believe with access to the most current medication I will live many more years"

Share Your StorySee all stories

Fundraise for Rare Cancers

Run, skip, BBQ, walk, swim, shave, cycle, or sing to make it fair for Rare! By setting up a fundraising page you are contributing to our work and getting your community in on the act.

Create a fundraising page

Whether you want to set a personal challenge, participate in a local fun run, or host a small event, every dollar you raise will help make a difference.

Create a fundraising page Donate to a fundraiser

Attending a challenge event?

We have partnered with several of Australia's iconic fun runs, marathons and running festivals. Register and participate as a charity superstar for Rare Cancers Australia.

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Driving change in access, affordability, and quality of care

Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.

Find out more

Latest Reports and SubmissionsRights and Roles of Australian Cancer PatientsNational Medicines Policy Submission 
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