About the Rare Cancers Australia KnowledgeBase
The RCA Clinical Advisory Board (CAB) is comprised of senior health professionals who work within the oncology sector. The majority of information contained within the Cancer Types directory is courtesy of www.cancer.gov, the US Government’s official cancer website. This information has been reproduced with the permission of the National Cancer Institute. Information sourced from this website is naturalised so that it conforms to Australian spelling and grammar conventions before it is posted to the RCA KnowledgeBase.
Information on rarer cancer types and sub-types that the NCI website does not include is obtained by thorough research on the web. Once information that the RCA team deem may be suitable is sourced, it is passed on to a member of the CAB to ensure that it is from a reputable source, that the information is accurate, up to date and applicable to the Australian situation. Only once approved by the CAB is the information added to the RCA Cancer Directory, with relevant links back to the original source.
The cancer services list has been created with reference to state and national registries, a list of cancer services and the services they provide. The cooperation of corporate healthcare groups in providing details of their centres that assist in the treatment of cancer has also played a pivotal role in establishing this list.
RCA has distributed a survey to active professionals in the oncology sector. RCA distributes these surveys at every opportunity, in order to continue to develop the list of health professionals specialising in specific rare cancers. RCA issues an annual update request to clinicians, in order to ensure information on the site remains current.
Not-for-profit organisations and support groups are required to complete an application form provided by RCA. The Patient Support team review these applications on a case-by-case basis, to ensure all listed services and organisations are legitimate and provide relevant assistance to those affected by cancer.
RCA lists clinical trials as we are made aware of them and the list is updated on a regular basis. The list is by no means exhaustive. For further clinical trials currently conducted in Australia, we encourage you to visit the following websites:
Content on the Rare Cancers Australia KnowledgeBase is provided for general information only. It is not intended as medical advice, and should not be relied upon as a substitute for consultations with qualified health professionals who can determine your individual medical needs.