Dialog Box


Canberra Forum

DAY 2: The Patient Voice Initiative

Wednesday 19 October 2016, Old Parliament House Canberra


Welcome - Sophie Scott 


A patient view on why patient input is critical - Jessica Bean 


A healthcare professional view on why patient input is critical - Associate Professor Clare Scott 


Patient engagement and the HTA_Aus Think Tank – Update on work in progress 


What’s happening internationally - HTAi Patient and Citizen Involvement in HTA Interest Group (PCIG)


Recap on February and satellite meetings


Morning Tea 


Workshop outline: Creating a best-practice framework that includes the role and value of patients and consumers in HTA - what we can do today! 



  • Earlier engagement in the HTA process
  • A new patient/consumer portal for HTA information and input
  • Consensus on methodologies and approaches to capture patient perspective
  • Increased transparency and feedback about how patient input is used in decision making

 12 Noon



Workshops Resume 


Workshops report back (15 minutes per group)


Interest groups formation and pre-planning:

  • Legislative change requiring PBAC to consider the patient perspective alongside clinical safety, effectiveness and cost
  • Independent patient sub-committee to advise PBAC
  • Ensuring PBAC Guidelines incorporate recommendations around patient input


Wrap up and next steps – Richard Vines and Jessica Bean



*Please not that this Program is subject to change.