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Canberra Forum

DAY 2: The Patient Voice Initiative

Wednesday 19 October 2016, Old Parliament House Canberra

 8.30am

Welcome - Sophie Scott 

 8.40am

A patient view on why patient input is critical - Jessica Bean 

 9.00am

A healthcare professional view on why patient input is critical - Associate Professor Clare Scott 

 9.25am

Patient engagement and the HTA_Aus Think Tank – Update on work in progress 

 9.40am

What’s happening internationally - HTAi Patient and Citizen Involvement in HTA Interest Group (PCIG)

 9.55am

Recap on February and satellite meetings

 10.15am 

Morning Tea 

 10.30am

Workshop outline: Creating a best-practice framework that includes the role and value of patients and consumers in HTA - what we can do today! 

 10.45am

Workshops:

  • Earlier engagement in the HTA process
  • A new patient/consumer portal for HTA information and input
  • Consensus on methodologies and approaches to capture patient perspective
  • Increased transparency and feedback about how patient input is used in decision making

 12 Noon

Lunch

 12.30pm

Workshops Resume 

 1.30pm

Workshops report back (15 minutes per group)

 2.30pm

Interest groups formation and pre-planning:

  • Legislative change requiring PBAC to consider the patient perspective alongside clinical safety, effectiveness and cost
  • Independent patient sub-committee to advise PBAC
  • Ensuring PBAC Guidelines incorporate recommendations around patient input

 3.30pm

Wrap up and next steps – Richard Vines and Jessica Bean

 4.00pm

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*Please not that this Program is subject to change.