Reports & Submissions
Rare Cancers Australia (RCA) is determined to increase awareness, highlight the need for further research and initiate policy discussion and action to improve the lives and outcomes of all Australians living with a rare or less common cancer. RCA is currently working with government, clinicians and industry for change.
First report of its kind paves the way for government, industry and research community to unite to improve access and outcomes for Australian patients
This submission adresses the urgent need for improved funding into research for cancers with low survival rates, many of which are rare or less common.
A trancscript of our CEO Richard Vines' address to the senate inquiry public hearing can be found here
The need for patient groups to provide constructive input into the shape and priorities of health services within the Asia region.
2016 update on the status of rare and less common cancers in Australia, including patient outcomes, research and treatment funding.
Details incidence, mortality and survival rates and also examines current funding levels for research and treatment.
This submission was presented to the Senate Community Affairs Committee and addresses the shortfalls of our current medicines funding and access model. It offers two recommendations to improve the system.
A survey of pharmaceutical company employees, physicians and patient/advocacy group members.